by Iris Wright-Hart (Author)
A Story of Pain, Power, and Unseen Strength
Mena's voice echoes through hospital walls, family memories, and journal pages-pleading, protesting, educating, surviving. Living with Sickle Cell Disease (specifically Hemoglobin SC), she's faced more than just physical pain. She's fought to be heard by doctors, understood by loved ones, and seen as more than a diagnosis.
Told through the eyes of a mother, daughter, advocate, and warrior, Nobody's Listening To Me-If Only They Could C Me: A Daughter's Battle with Sickle Cell weaves intimate conversations, medical trauma, and moments of laughter into a powerful tapestry of resilience. From childhood memories to adult hospital visits, from misunderstood mood swings to activism in her community-Mena's story challenges stigma, exposes neglect, and demands change.
This is more than a memoir. It's a call to awareness-for every caregiver, educator, medical professional, and family affected by Sickle Cell Disease.
If only they could see what she feels. If only they could hear what she's been trying to say.